An informal discussion on Considerations in Clinical Care for People with Autism and IDD
Hosted and Recorded by QMAP Academy
Recorded: March 23, 2023, 10:00 – 11:00 AM Mountain Time

AGENDA
Welcome
A Parent’s Journey - Stephanie James
Considerations in Clinical Care for People with Autism and IDD - Maura K. Sullivan, MPA
Q&A
Closing

Host - Darla Stuart, QMAP ACADEMY

Meet Stephanie James
Stephanie James is a parent advocate and mother to an autistic daughter, Danielle. Danielle was intelligent, sensitive, kind, caring, beautiful, with a wonderful wit. Sadly she passed in 2018 from medical neglect, because no one recognized how ill she was. Her life can be a lesson for those in the medical field to learn how to listen better, care more, and respect the autistic individual. Stephanie will share a short version of Danielle's life of trying to get medical professionals to understand Danielle's health needs.

Meet Maura K. Sullivan, MPA Maura K Sullivan, MPA is a dedicated and passionate leader in advocacy for people with autism and intellectual and developmental disabilities (IDD), with an expertise in disability health policy and education. She is a registered MA lobbyist for The Arc of MA and represent Advocates for Autism of MA on legislative priorities at the State House. She collaborates with key community stakeholders to impact bias against people with disabilities, including her work on training medical professionals through The Arc of MA, Considerations in Clinical Care for People with Autism and IDD. Her life focus for this work comes from being a mother of two young men with profound autism and intellectual disabilities.