UCDC: Assessing Health-Related Quality of Life in Children and Adults with Urea Cycle Disorders

Nov 14, 2023 · 1m 52s
UCDC: Assessing Health-Related Quality of Life in Children and Adults with Urea Cycle Disorders
Description

New research from the Urea Cycle Disorders Consortium (UCDC). This summary is based on a paper published in the journal Molecular Genetics and Metabolism on September 8, 2023, titled "Health-related...

show more
New research from the Urea Cycle Disorders Consortium (UCDC). This summary is based on a paper published in the journal Molecular Genetics and Metabolism on September 8, 2023, titled "Health-related quality of life in a systematically assessed cohort of children and adults with urea cycle disorders."

Read the paper here: https://www.sciencedirect.com/science/article/abs/pii/S1096719223003268?via%3Dihub

Learn more about UCDC: https://ucdc.rarediseasesnetwork.org
show less
Information
Author RDCRN
Organization RDCRN
Website -
Tags

Looks like you don't have any active episode

Browse Spreaker Catalogue to discover great new content

Current

Podcast Cover

Looks like you don't have any episodes in your queue

Browse Spreaker Catalogue to discover great new content

Next Up

Episode Cover Episode Cover

It's so quiet here...

Time to discover new episodes!

Discover
Your Library
Search