GLIA-CTN: Sharing a New Approach to Creating Longitudinal Natural History Studies for Rare Diseases
Jun 26, 2024 ·
1m 35s
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Description
New research from the Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN). This summary is based on a paper published in the journal Molecular Genetics and Metabolism on March 18, 2024,...
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New research from the Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN). This summary is based on a paper published in the journal Molecular Genetics and Metabolism on March 18, 2024, titled "Longitudinal natural history studies based on real-world data in rare diseases: Opportunity and a novel approach."
Read the paper here: https://www.sciencedirect.com/science/article/abs/pii/S1096719224002683?via%3Dihub
Learn more about GLIA-CTN: https://glia-ctn.rarediseasesnetwork.org
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Read the paper here: https://www.sciencedirect.com/science/article/abs/pii/S1096719224002683?via%3Dihub
Learn more about GLIA-CTN: https://glia-ctn.rarediseasesnetwork.org
Information
| Author | RDCRN |
| Organization | RDCRN |
| Website | - |
| Tags |
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